WHAT: The Building Industry Charitable Foundation of the Building Industry Association of Greater Louisville in partnership with Kosair Charities® and YouthBuild Louisville will present the dream playhouses built for two lucky Kosair Kids® during the “Playhouse Reveal” event on Thursday, March 31 at 5:00 p.m. at YouthBuild Louisville.
Registered Builder Jack Band and Registered Remodelers Donald Wirtzberger & Terry Phelps and YouthBuild Louisville students began construction on these dream playhouses in November 2015. The children will be able to see their finished playhouses for the very first time at the event.
This is a great opportunity for media to interview the families and get a full view of the finished houses.
WHEN: Thursday, March 31, 2016 at 5:00 p.m. to 6:30 p.m.
WHO: Lynn Rippy, YouthBuild
Congressman, John Yarmuth
Chuck Kavanaugh, Executive Vice President,
Building Industry Association of Greater Louisville
Jerry Ward, Board, Board Chairman Kosair Charities®
Diane Nelson, VIPS
YouthBuild Louisville Student
Playhouse recipient: Molly Turner
Playhouse recipient: Lily Singleton
*note: speaking order subject to change
WHERE: YouthBuild Louisville Campus, 800 South Preston Street, Louisville, Ky., 40203
WHY: The Playhouses were designed, built and decorated especially for each recipient based on their specific needs, and the children were involved in every step of the process. Registered Builders and Registered Remodelers teamed up with local businesses to create playhouses that will not only enhance the child’s life, but also serve as a therapy-aide for continued strength and improvement to their quality of life.
The playhouses are a perfect project for the Building Industry Charitable Foundation because it allows members of the Building Industry Association of Greater Louisville to use their talents and expertise to not only build something special for a deserving child, but also share their skills with YouthBuild Louisville students by mentoring the young people involved in the vocational and educational training.
SPONSORS: These amazing playhouses could not have happened with out the support of the following companies:
Partners: Builders Industry Charitable Foundation, Kosair Charities and YouthBuild Louisville
Presenting Sponsor: River City Bank
Playhouse Builders: Registered Remodelers Donald Wirtzberger and Terry Phelps, Sierra Design & Construction
Registered Builder Jack Band, Jack Band Builders
Supporting Sponsors: River City Bank, Carpet Specialists, America’s Floor Source, Bailey Remodeling & Construction, Boland Maloney Realty, The Courier Journal, Fireplace Distributors, Hawkeye Security & Electronics, Horne Title, Logan Lavelle Hunt Insurance, PPG/Porter Paints, RJ Thieneman, Screens of Kentucky, A & G Drywall, Art Designs by Liz, Bonnycastle Appliance & TV, Ernst Concrete Company, Frank Kaufman Tile Work, Graber Insealators of Louisville, Highland Roofing, Johnson Electric, K-I Lumber & Building Materials, Louisville Tile Distributors, Nilco – Hardie Siding, River City Glass & Mirror, Robin Straub & Amanda Grinnan, Shed Man, Sherwin Williams -Veterans Parkway & Staff, Wheeler & Ward Concrete, All Good Roofing, Alside Supply, Candlelight Electric, Graeber Insealators of Louisville, The Heitlauf Corporation, JB’s Carpet Barn, Jones Architecture & Design, K-I Lumber & Building Materials, Louisville Drywall Company, Mike Krebs, S & K Trim, PPG/Porter Paints, Robbins Heating & Air Conditioning, Sullivan College of Technology & Design, Top Remodeling of Kentucky.
2016 Recipients are:
On July 30, 2009, Molly was born at Baptist East Hospital in Louisville, Kentucky. The next day, Molly began having seizures and was transported to Kosair Children’s Hospital. Her labs, MRI and CAT scan all came back normal, but the seizures didn’t stop.
Molly spent nearly a month highly sedated from medication and on a feeding tube in the NICU while the doctors tried everything they could to get the seizures under control. Molly finally returned home on Sept. 3, 2009 with a diagnosis of KCNQ2 mutation, with the hope that her seizures would stop and she would develop normally. The first six months of Molly’s life were spent in and out of the hospital trying to control the seizures.
When Molly began having delays in her development, her Neurologist and Geneticist started looking into other genetic mutations. In 2013, a receive gene-sequencing test was performed on Molly and her parents. The results came back in May 2014, with de novo KCNQ2 mutation only. The Neurologist confirmed that there are more severe cases that present with significant developmental delays.
Molly continues to get therapy both at Harmony Elementary and The Kids Center in Louisville, Ky. She continues to struggle with feeding, but can eat a mashed/puréed diet. She is not verbal or mobile. She has Cortical Visual Impairment and has had surgery for her Strabismus. Molly is a beautiful addition to the Turner family, and she allows others to the see the ability in her disabilities every day, which is a true gift from God.
Lily Singleton is a happy, energetic and smart 8-year-old. She loves dogs, books, crafts and watching YouTube videos. She doesn’t appear to be fighting a chronic illness, but she is. Every day, cystic fibrosis tries to steal away her health, but Lily fights back, proving her strength while inspiring others.
Lily was diagnosed with cystic fibrosis at birth, and symptoms began to show when she was five months old. She wasn’t gaining weight, so a feeding tube was placed in her stomach for extra nutrition. She underwent various procedures and endured many hospital stays to fight the damage that CF was causing her little body.
In 2012, she began kindergarten. Within a couple of months, her lung collapsed. She was in and out of the hospital for the next four months, and she had to miss out on her kindergarten year. At 5 ½ years old, Lily was on constant oxygen and 28 pounds.
Lily was approved to receive Kalydeco, a new FDA-approved medicine. She took her first dose on Feb. 1, 2013, and within a few weeks, she showed a huge improvement. Her weight was going up. She no longer needed an oxygen mask. She could run and play without getting winded.
Today, Lily takes Kalydeco twice a day, along with other medications that help her thrive. She does airway clearance vest treatments with various breathing treatments, multiple times a day. These treatments and medications allow her lungs to get rid of the thick, sticky mucus caused by CF and allows her to gain the weight she needs. Cystic fibrosis is a horrible disease that steals the lives of many young children. It’s a disease that needs to be fought daily. Lily has shown that she is willing to stay strong and can endure anything that comes her way.
About Kosair Charities: Since 1923 Kosair Charities has had one primary mission – helping children in need. Kosair Charities knows that the quality of a child’s tomorrow depends largely on the quality of health, medical treatment, and support a child receives today. For more information please visit http://kosair.org or call 502.637.7696.
About the Building Industry Charitable Foundation: The Building Industry Charitable Foundation was granted 501(c)3 status in 2009. It operates under the Executive Committee of the Building Industry Association of Greater Louisville with the mission to integrate the charitable needs of the community with the philanthropic goals of the building industry and the Association’s members. The Building Industry Charitable Foundation developed the playhouse project as a way to showcase the talents of the Association’s Registered Builder and Registered Remodeler members while providing a meaningful experience to local children and young adults through its partnerships with Kosair Charities and YouthBuild Louisville. For more information, visit www.BICFLouisville.org.
About YouthBuild Louisville:YouthBuild Louisville is an education, job training and leadership program that provides low-income young adults ages 16-24 opportunities to realize their potential as active community leaders and an educated workforce for Louisville. YouthBuild’s mission is to champion young adults to be great citizens who build productive lives and sustainable communities. Through the development of life and job skills, students are inspired to reach lifelong success as they become strong, confident young adults with a commitment to work, education, family and community. To learn more about YouthBuild Louisville, visit YBLKY.org