Kosair Kids®

We are blessed to have these children and many others as Kosair Kids®. We’d like to share some of their stories.

Jenna

Jenna

Jenna

At 3lbs 12 oz, Jenna Mohammed was the first baby born in Louisville in the year 2009. The itty bitty Baby New Year had a long way to go. Jenna and her family have had great partners in making her dreams a reality.

Click here for more of Jenna’s story. 

Hunter

Hunter

Hunter

At 8 years old Hunter has been through a lot. Hunter was born with Down’s Syndrome and has suffered from complications with his heart but that doesn’t stop him. Hunter always has a smile on his face, especially when he is hanging out with his best friend – his brother.

Click here for more of Hunter’s story.

Caden

Caden

Caden

Caden was born in 2007 with Spina Bifida, a clubfoot and Hydrocephalus.

At 13 months old, he needed a shunt replacement due to seizures.  As a toddler, Caden needed several leg operations, one to restructure his clubfoot and another to help straighten his right leg to be able to walk in full braces.

Click here for more of Caden’s story.

Stanley

Stanley

Stanley

Every Kosair Kid is special, but only Stanley is in the Rockabilly Hall of Fame.

He almost didn’t survive childhood.

Click here for more of Stanley’s story.

June

June

June

Today, June loves to work out at the gym. The Pleasure Ridge Park resident has run several mini-marathons. In short, she can’t sit still.

That’s a long way from where she started.

Click here for more of June’s story.

Elizabeth Bromley

Elizabeth

Elizabeth

Elizabeth was born with several health issues, from a heart condition to chronic lung disease and digestive problems.

Click here for more of Elizabeth’s story.

Josh and Nicholas

Josh, Nicholas, Todd and Robin

Josh, Nicholas, Todd and Robin

When Todd and Robin adopted twin 18-month-old boys from Ukraine, the youngsters had some catching up to do.

Josh and Nicholas are autistic and have cerebral palsy. Their development was further delayed from spending their lives in an orphanage.

Click here for more of Josh and Nicholas’s story.

Imani Biggers

Imani

Imani

As the new school year dawned, Vanessa, Imani’s mom, faced a crisis.

Her 9-year-old daughter, lost one of her hearing aids, and Vanessa, a single mother who was temporarily out of a job, didn’t know how she would replace the expensive device.

Click here for more of Imani’s story.

Winslow Pipes, Kosair Kid

Winslow

Winslow

From birth, Winslow faced many developmental challenges. But today, thanks to much love and support from his family and a huge boost from Kosair Charities, the six-year-old hardly misses a beat.

Today, Winslow is active, charming and highly social.

Click here for more of Winslow’s story.

Griff Powell, Kosair Kid

Griff

Griff

Shortly after Griff was born, he had trouble breathing. Unsure of the cause, doctors spent several days testing Griff to find an answer. He was soon diagnosed with a rare form of Down’s Syndrome. It is the thought of Kosair’s help going forward that eases his parents’ mind.

Click here for more of Griff’s story.

Addie Childers, Kosair Kid

Addie

Addie

Following complications at birth, Addie was diagnosed with symptoms similar to cerebral palsy. She would need expensive therapy to live a full life. Her parents, Dustin and Jill, were left scrambling when their insurance declined coverage for Addie’s necessary therapy. The family knew of one place to turn, Kosair Charities. Fortunately, Kosair covered all of Addie’s medical bills. It is a blessing the family works hard to pass on.

Click here for more of Addie’s story.

Lexi Palmer

Lexi

Lexi

At just 7 weeks old, Lexi was diagnosed with infantile botulism, an illness that can occur when an infant ingests bacteria that produce a toxin inside the body.

The condition can be frightening because it can cause muscle weakness and breathing problems.

Click here for more of Lexi’s story.

Sasha Texas, Kosair Kid

Sascha

Sascha

Born at 26 weeks, not only was Sascha extremely premature, but she also had suffered a stroke upon delivery. With the help of Kosair Charities, the family was able to get Sascha in front of good doctors who recommended the family to First Steps to get Sascha on the road to the therapy she needed.

Click here for more of Sascha’s story.

Clayton Freiberger, Kosair Kid

Clayton

Clayton

When the family’s second son, Clayton, was born in March 2010, their joy was tempered by some unexpected news: Clayton had a unilateral complete cleft lip and palate. Those conditions are often noticed on an ultrasound at 20 weeks, but in this case, that didn’t happen.

Click here for more of Clayton’s story.

Maralyn Lewis, Kosair Kid

Maralyn

Maralyn

Maralyn has gorgeous red curls and a sly sense of humor. When her mother jokes that being featured in Kite Tales will make Maralyn famous, she replies, deadpan: “I’m gonna be famous anyway.”

Click here for more of Maralyn’s story.

Zoie Lane Burns, Kosair Kid

Zoie Lane

Zoie

Zoie was born with a rare genetic disorder that resulted in a second thumb on one hand, as well as one eye with an abnormal shape and size. This condition, called microphthalmia, prevents complete vision.

Click here for more of Zoie’s story.

Kamauri

Kamauri

Kamauri

Kamauri  needed a molding helmet to correct a problem resulting from plagiocephaly (a flattening of one side of the head) caused by torticollis, a condition in which the head is tilted toward one side and the chin to another side.

Click here for more of Kamauri’s story.

Hannah and Keaton

Jason and Holly looked forward to the birth of their twins with much excitement.

Hannah & Keaton Looper

Hannah & Keaton

However, the twins made an early arrival. Keaton Wayne, weighing 2 lb. 4 oz. and Hannah Renee, weighing 2 lb. 11 oz., were born at only 28 weeks.

Click here for more of Hannah’s and Keaton’s story.

Megan

Six-year-old Megan lives a perfectly normal life, in spite of the fact that she was diagnosed with Down syndrome at birth.

Megan Gillroy

Megan

While the initial shock of having a special needs child was overwhelming for parents Tom and Jennifer, they quickly made a decision that would set the course for Megan’s life.

 Click here for more of Megan’s story.

Ella

Ella Gordon

Ella

“We had no idea that her leg was not developing properly until birth,” said mother, Tracey. Not only was Ella born six weeks premature, spending five weeks in a neonatal intensive care unit, she also was diagnosed with severe acid reflux and amniotic band syndrome, the reason for the improper development of her leg.

Click here for more of Ella’s story.

Whitney

Whitney Workman

Whitney

Whitney was born premature  on August 14, 1996, almost four months before her due date, she entered the world weighing just one pound and seven ounces, measuring 12 inches long.

Click here for more of Whitney’s story.

Dr. James Hurt

Dr. James Hurt

Dr. James Hurt

Meet one our oldest Kosair Kids®.  Dr. James Hurt was diagnosed with a bone infection when he was just 11 years old.  After receiving his diagnosis in 1934, he was immediately referred to Kosair Crippled Children Hospital.

Click here for more of Dr. James Hurt’s story.

Randy

Once  a week, Randy’s mother carried her baby boy on her hip through the front doors of Kosair Crippled Children Hospital,

Randy Mullins

Randy

making him feel like the most special kid in the world.  From the time Randy was just a toddler until he was 7 years old, he made weekly visits to Kosair.  He was born with a club foot and had to have cord lengthening surgery.

Click here for more of Randy’s story.

Pamela

Pamela

Pamela

It will be 55 years this summer that Pamela  began her Kosair Charities experience.  After she was diagnosed with Blount’s Disease in 1958 at only 1 year old, her family turned to Kosair Crippled Children Hospital for treatment.

Click here for more of Pamela’s story.

Chester

Chester

Chester

Since infancy, Chester had undergone several operations and therapy at a Shriners hospital supported by Kosair Charities and Kosair Shrine Temple to fix a “a club foot that was so bad that basically he didn’t even have a foot.”  Using a remarkable surgical procedure, doctors stretched Chester’s bones and used them to form a new foot.

Click here for more of Chester’s story.

Anthony

Anthony Martin Abney

Anthony

Anthony had been in his mother’s Tummy only for four months when prenatal testing showed a birth defect called gastroschisis — a defect that causes the baby’s intestines to protrude from a small hole in his abdominal wall.

Click here for more of Anthony’s story.

Ashley

Ashley Schmitt

Ashley

Ashley was born with a defective liver, causing severe jaundice, constant itching and malnutrition. Doctors told her parents, Ed and Theresa, that Ashley needed a liver transplant to survive.

Click here for more of Ashley’s story.

 Brittany

Brittany Burton

Brittany

Brittany was in the sixth grade when her doctor diagnosed her with scoliosis, or curvature of the spine.

The family’s primary care physician referred them to a spine specialist who examined Brittany and recommended she wear a back brace. Brittany was in that brace for 23 hours a day, but that didn’t slow her down.

Click here for more of Brittany’s story.

Isabella

Isabella Peak

Isabella

Isabelle was born on May 1998 with a club foot. With her right foot turned in, it would be impossible for Isabella to learn to walk normally, or to do the things that every parent anticipates for their children: running, dancing, riding bicycles.

Click here for more of Isabella’s story.

Johnathon

Johnathon Boles

Johnathon

Charlie and Debbie life changed drastically within the course of one day when the Hardin County couple discovered that their son, Johnathon, had an incurable bleeding disorder.

Click here for more of Johnathon’s story.

Kristin

Kristin Knabel

Kristin

Kristin was born with spina bifida, a birth defect in which the spine has not closed – resulting in paralysis and other serious lifelong disabilities, requiring much medical attention and intensive therapy.

Click here for more of Kristin’s story.

Dana

At 13 years old, Dana was Dana Nicholsdiagnosed with a detached retina. She needed immediate surgery to save her vision, but her family could not afford the bill on such short notice. That’s when Kosair Charities stepped in.

Click here for more of Dana’s story

Samuel

Samuel Harris

Samuel

Samuel began fighting for his life at only 6 hours old.  Diagnosed with Persistent Pulmonary Hypertension of the Newborn (PPHN), he was immediately to a Louisville Hospital. Samuel needed intensive medical care and treatment.

Click here for more of Samuel’s story

Hannah

Hannah Holston

Hannah

Hannah was born with C.H.A.R.G.E. Association, a rare disorder characterized by multiple birth defects, she had a variety of disabilities including hearing loss, cleft palate, facial paralysis and growth and developmental delays.

Click here for more of Hannah’s story

EricaErica_1

Erica was 15 years old when she was diagnosed with bone cancer. The teenager was to go through extensive therapies to keep her alive while other’s her age were hanging with friends and going to the movies.

Click here to read more of Erica’s story

Dustin

Dustin

Dustin

 

Dustin had repeated ear infections until, at age four, he needed a surgical operation or else he would face severe, permanent hearing loss.

Click here to read more of Dustin’s story

 Jamie Ranes

Jamie Ranes

Jamie

Jamie, of Louisville, needed surgery to remove a bronchial cyst and correct an ear deformity, but like many, his parents could not afford the cost. Kosair Charities was able to help.

Click here to read more of Jamie’s story 

Kelley

Kelley Arnold

Kelley

Kelly of Campbellsville was born with cerebral palsy. Her only hope to ever walk without braces depended on a new kind of corrective surgery not covered by her families insurance.

Click here to read more of Kelley’s story